Information for clinicians

This page contains information that may be of importance to clinicians in the field of rare diseases or any other field of healthcare. ERN CRANIO works on different activities where experts from the network participate or contribute to.

WHAT WE DO

STANDARDS OF CARE

For some rare or complex conditions, there are no clinical guidelines available at present. ERN CRANIO and it's members develop European standards of care.

TRAINING & EXCHANGES

ERN CRANIO offers clinical exchanges to all its members in order to exchange knowledge and high standard of surgical care.

CPMS

The Clinical Patient Management System (CPMS) is a web-based clinical software application allowing healthcare providers from all over the EU to work together virtually to diagnose and treat patients.

ERN CRANIO REGISTRY

ERN CRANIO is developing a registry focused on the outcome of treatment using standardised diagnosis specific outcome sets.

ERN EVALUATION OR 'AMEQUIS'

The European Commission has initiated an evaluation, where all ERNs & full members are evaluated on their performance.

ERN CRANIO RESEARCH

Within the field of craniofacial disorders, research projects are carried out between various centers within the CRANIO network.