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Patient driven research
Experiences, long-term, patient perspective, patient participation, craniofacial
Prof Lars Kölby (Sahlgrenska University Hospital, Gothenburg, Sweden) and Prof Hester van de Bovenkamp (Erasmus University, Rotterdam, The Netherlands)
This project aims to address (research) questions from the perspective of patients and parents dealing with congenital craniofacial conditions using mixed methods (ie. combining quantitative & qualitative research).
Centers Involved:
Working Groups Involved:
Patient representative working group, Pyschologists Working Group, Craniosynostosis Working Group
Sahlgrenska University Hospital, (Lars Kölby, Marizela Kljajic), ePAG group
Funding:
ERN CRANIO
Status:
Contact Person:
Mariët Faasse (m.faasse.1@erasmusmc.nl)
Ongoing
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