We invite you to sign the Declaration on the European Innovation and Care Ecosystem for Rare and Complex Diseases.

Launched at the High-Level Meeting for Rare and Complex Diseases in December 2025, this Declaration is a major step toward better and more equal care for rare disease patients in Europe.

Created together with patients, clinicians, ERNs, researchers and industry partners, it highlights 8 key actions, including:

 🔹 Faster and better diagnostics

 🔹 Improved access to treatments across Europe

 🔹 Stronger research and data infrastructures (like CoRDICs)

 🔹 Better use of real‑world evidence

 🔹 And securing dedicated EU funding for the ERNs in the next budget

The ERNs already make a big difference by connecting experts across borders, sharing knowledge, and strengthening research through the ERN Registries.

💙 By signing, you help:

 • Build political momentum for an EU Action Plan on Rare Diseases

 • Support sustainability of the ERNs

 • Strengthen the united voice of the rare disease community

👉 Sign the Declaration: https://lnkd.in/e-yxpSrz