ern-cranio

A group of researchers within the European Reference Network CRANIO ( www.ern-cranio.eu ) are developing European recommendations for mental health care in craniofacial teams  (cleft lip and/or palate and other rare craniofacial conditions). To ensure that the recommendations reflect real needs, we are inviting people with lived experiences to take part in a short survey . If you have a craniofacial condition or are a parent of a child (young or adult) with such a condition, we would greatly...

Craniofacial basic and advanced techniques 2 – Unicoronal and hypertelorism workshop will take place on the 26th- 28th of March 2026! The Necker Workshop 2026 is organized by the French Reference Center for Craniosynostoses and Craniofacial Malformations (CRANIOST), in collaboration with an international expert committee and supported by ERN CRANIO. After two successful events in 2024 and 2025, this year edition will allow craniofacial surgeons to learn unicoronal craniosynostosis correction...

On 27–28 February, the first ERN overarching workshop on Transition of Care in Rare Diseases took place in Ghent, Belgium. Several members from ERN CRANIO joined the workshop, thank you to Dr. Frederic Acke, Dr. Youri Anastassov, dr. Petra Kavadzieva, Rossen Kolev, Elin Weissbach, Noelle O’Mahony and Aoife Dillon for representing ERN CRANIO. Two of our participants kindly shared their experiences from the workshop. You can read their reflections below:    Both Youri Anastassov from the...