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Join date: Jun 6, 2023

Posts (15)

May 13, 20261 min
ERN CRANIO Exchange ASST Azienda Ospedaliera Papa Giovanni XXIII
From April 13 to 19, Silja Wiese, one of the OR nurses, completed a clinical exchange in the pediatric department of Papa Giovanni Hospital in Bergamo. Silja highlighted: “My stay began with a warm welcome from Ramona Capelli (ERN ERNICA), who made this impressive week possible.” During her stay, Silja observed several interesting differences compared to the Netherlands, for example in work schedules, the use of sedation, and the organization of patient pathways. These insights offered a...

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May 4, 20261 min
Highlights of the 3rd CF Necker Workshop (26-28 March) 2026 
The 3rd CF Necker Workshop, held on March 26–28, 2026, brought together over 40 participants from 21 countries for an intensive and hands‑on learning experience. We’re proud to share that 97% of participants reported being satisfied or very satisfied, with their learning expectations fully met. 🌍📚 The workshop welcomed more than 20 international faculty members from leading craniofacial centers worldwide. Through high‑quality lectures and hands‑on tutoring on resin models, participants...

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Mar 25, 20261 min
Help Us Improve Psychological Services in Craniofacial Care: A European survey of patients’ and parents’ experiences 
A group of researchers within the European Reference Network CRANIO (www.ern-cranio.eu) are developing European recommendations for mental health care in craniofacial teams (cleft lip and/or palate and other rare craniofacial conditions). To ensure that the recommendations reflect real needs, we are inviting people with lived experiences to take part in a short survey. If you have a craniofacial condition or are a parent of a child (young or adult) with such a condition, we would greatly...

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