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Join date: Jun 6, 2023

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Sep 23, 2026 ∙ 1 min
Oral Health Matters 🦷 – Webinar 29 September 2026 | 17:00-18:30 CEST
A webinar from ERN ITHACA in collaboration with ERN CRANIO Register now : https://events.teams.microsoft.com/event/3193662c-2d91-43cc-aa44-cf97a39a7b44@2461c129-d44f-406d-a778-d1a3c4c1527c Join leading experts and a parent advocate to discuss key aspects of oral health in children with complex healthcare needs. From oral function assessment to cleft lip and palate care and family experiences, this webinar offers practical insights for healthcare professionals and patient communities alike....

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Sep 23, 2026 ∙ 1 min
EURORDIS Patient Partnership Webinar: Integrating mental health into European Reference Networks - VASCERN & ERN CRANIO
🤩 Webinar alert: EURORDIS Patient Partnership Webinar: Integrating mental health into European Reference Networks. 🗓️ Date: 28 September 2026 ⏰ Time: 12:00-13:15 CET 📍 Where: Online Next week, EURORDIS-Rare Diseases Europe is hosting a webinar on integrating mental health and wellbeing into European Reference Networks. During the webinar members of our ERN CRANIO psychology working group, together with the psychology group from VASCERN, European Reference Network on Rare Multisystemic...

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Sep 1, 2026 ∙ 1 min
✨ Welcome back!
We hope you had a wonderful summer and are returning with fresh energy for the months ahead. At ERN CRANIO, we're looking forward to continuing our work together to improve care, research, and collaboration for people living with rare craniofacial and ENT conditions. Stay tuned to our social media channels and website for exciting updates, opportunities, and stories from across the ERN CRANIO community! 🔗 Have a look and YouTube for educational videos: https://lnkd.in/e_7pmTNN

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