Patient association in the spotlight

Patient association in the spotlight: Pierre Robin Europe. Philippe Pakter represents people with the Pierre Robin Sequence within the ERN CRANIO network.

Pierre Robin Europe is a not-for-profit international organization of patients and clinicians that provides support and counseling for patients suffering from the rare disease, Pierre Robin Sequence / Pierre Robin Syndrome. They collaborate with local Pierre Robin Sequence patient groups and clinicians around the world and pursue various goals. 

Learn more about Pierre Robin Europe: Welcome to Pierre Robin Europe