Meet our Patient Representatives: Vincent Bouldoires

Today we are introducing another patient representative of ERN CRANIO for the Cleft and Craniofacial awareness and prevention month. Meet Vincent Bouldoires, one of ERN CRANIO's patient representatives and a member of ALPC.

“My name is Vincent Bouldoires, and I am honoured to join ERN CRANIO as the new representative of ALPC (Association nationale pour la promotion et le développement de la Langue française Parlée Complétée), the French association promoting Cued Speech (LfPC) and access to spoken French for deaf children and adults.

As member of ALPC, I am deeply committed to improving access to language, education and social inclusion for deaf children and adults. I strongly believe that patient organisations have an important role to play alongside healthcare professionals, researchers and reference centres in shaping better care pathways and supporting innovation.

Through my involvement in ERN CRANIO, I hope to contribute the perspective of families and deaf individuals, while strengthening collaboration between patient communities and healthcare experts across Europe. I look forward to working with all members of the network to advance knowledge, share experiences and improve the lives of people living with hearing loss and rare hearing disorders.”

Find out more about ALPC: Actualités - ALPC