Help Us Improve Psychological Services in Craniofacial Care: A European survey of patients’ and parents’ experiences
- ern-cranio
- 8 hours ago
- 1 min read
A group of researchers within the European Reference Network CRANIO (www.ern-cranio.eu) are developing European recommendations for mental health care in craniofacial teams (cleft lip and/or palate and other rare craniofacial conditions). To ensure that the recommendations reflect real needs, we are inviting people with lived experiences to take part in a short survey. If you have a craniofacial condition or are a parent of a child (young or adult) with such a condition, we would greatly appreciate your input. We kindly encourage you to share this survey with others who may want to contribute.
The survey is available in 17 languages, is anonymous and does not include any personal information that could identify you. Answering the survey should take a maximum of approximately 20 minutes.
If you have any questions or would like more information or materials for dissemination, please contact the project manager, Kristin Billaud Feragen at email: krifer@ous-hf.no. Please find a poster and the links to the survey below!
Thank you for your time and for sharing your experiences. Your contribution is
Survey links (available languages)
Poster for dissemination:
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