AWARENESS MONTH: CRANIOSYNOSTOSIS

July is Cleft and Craniofacial Awareness and Prevention Month! 

This month, we’re highlighting the rare conditions within ERN CRANIO. Today, we turn the spotlight on craniosynostosis, a condition affecting around 1 in every 2,100–2,500 babies born. 

Through ERN CRANIO, experts and patient representatives from across Europe work together to improve care, advance research, develop clinical guidelines, and share knowledge to achieve the best possible outcomes for people living with craniosynostosis. 

🔍 Find out more about craniosynostosis: 

🌐https://lnkd.in/eURxKFfY for more information

🎥 https://lnkd.in/e_7pmTNN for educational videos

🗒️ Survey: https://lnkd.in/eCKZMJgp 

🗒️ Guidelines: https://lnkd.in/eCPFaXCc