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ERN CRANIO nieuws & evenementen

Deze pagina bevat ERN CRANIO evenementen en ERN-gerelateerde evenementen.

Dec 31, 2025

European Commission workshops on patient's rights

Workshops hosted by the European Commission at national level focusing on patients’ rights in cross-border healthcare and European Reference Networks.

European Commission workshops on patient's rights

Apr 3, 2025

4th International Robin Sequence Consensus Meeting

3 - 4 April 2025, International Consensus Meeting on Robin Sequence in Paris, France

4th International Robin Sequence Consensus Meeting

Dec 12, 2024

Webinar: Gene Therapy for Hearing Loss: Today and Tomorrow

12 December at 17:30 CET

Webinar: Gene Therapy for Hearing Loss: Today and Tomorrow

Nov 6, 2024

ERN CRANIO 9th annual meeting

6 - 8 November 2024, ERN CRANIO 9th annual meeting in Gdansk, Poland

ERN CRANIO 9th annual meeting

Sep 13, 2024

Webinar: Sleep-Disordered Breathing in children with craniofacial anomalies

On the 13th of September from 12:00u - 15:00u, ERN CRANIO is organizing a long-awaited webinar on Sleep-Disordered Breathing in children with craniofacial anomalies.

Webinar: Sleep-Disordered Breathing in children with craniofacial anomalies

Sep 5, 2024

European Society of Craniofacial Surgery

5 - 7 September 2024, European Society of Craniofacial Surgery conference in Helsinki, Finland.

European Society of Craniofacial Surgery

Jun 25, 2024

European Cleft Palate Craniofacial Association (ECPCA) conference

European Cleft Palate Craniofacial Association (ECPCA) conference Milan, 25 - 28 June 2024

European Cleft Palate Craniofacial Association (ECPCA) conference

May 27, 2024

EJP RD Final Conference

27 & 28 May 2024, EJP RD Final Conference

EJP RD Final Conference

May 15, 2024

European Conference on Rare Diseases & Orphan Drugs

12th European Conference on Rare Diseases & Orphan Drugs, 15 & 16 May 2024 in Brussels Belgium or hybrid

European Conference on Rare Diseases & Orphan Drugs

May 13, 2024

EJP RD: “Training on strategies to foster solutions of undiagnosed rare disease cases”

13 - 15 May 2024 - EJP RD: “Training on strategies to foster solutions of undiagnosed rare disease cases”

EJP RD: “Training on strategies to foster solutions of undiagnosed rare disease cases”

May 6, 2024

MOOC course - EJP RD

Health data ethics & regulatory frameworks in rare disease research

MOOC course - EJP RD

Apr 5, 2024

Workshop Frontofacial monobloc advancement and posterior distraction

5 & 6 April 2024, Workshop hosted by Eric Arnaud and the Necker craniofacial team

Workshop Frontofacial monobloc advancement and posterior distraction

Feb 29, 2024

Rare Disease Day 2024

The global Rare Disease Day: raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.

Rare Disease Day 2024

Nov 16, 2023

ERN CRANIO 8th annual meeting

ERN CRANIO 8th annual meeting, Dublin, Ireland

ERN CRANIO 8th annual meeting

Oct 6, 2023

A letter to the European Commission

Call on the EU institution and EU Member States' governments to stand by the European Reference Networks

A letter to the European Commission

Nov 17, 2022

ERN CRANIO 7th annual meeting

17 & 18 November 2022, Berlin, Germany

ERN CRANIO 7th annual meeting
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