ERN CRANIO news & events

Workshops hosted by the European Commission at national level focusing on patients’ rights in cross-border healthcare and European Reference Networks.

3 - 4 April 2025, International Consensus Meeting on Robin Sequence in Paris, France

6 - 8 November 2024, ERN CRANIO 9th annual meeting in Gdansk, Poland

On the 13th of September from 12:00u - 15:00u, ERN CRANIO is organizing a long-awaited webinar on Sleep-Disordered Breathing in children with craniofacial anomalies.

5 - 7 September 2024, European Society of Craniofacial Surgery conference in Helsinki, Finland.

European Cleft Palate Craniofacial Association (ECPCA) conference Milan, 25 - 28 June 2024

27 & 28 May 2024, EJP RD Final Conference

12th European Conference on Rare Diseases & Orphan Drugs, 15 & 16 May 2024 in Brussels Belgium or hybrid

13 - 15 May 2024 - EJP RD: “Training on strategies to foster solutions of undiagnosed rare disease cases”

Health data ethics & regulatory frameworks in rare disease research

5 & 6 April 2024, Workshop hosted by Eric Arnaud and the Necker craniofacial team

The global Rare Disease Day: raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.

ERN CRANIO 8th annual meeting, Dublin, Ireland

Call on the EU institution and EU Member States' governments to stand by the European Reference Networks

17 & 18 November 2022, Berlin, Germany