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The European Reference Network for rare and/or complex craniofacial anomalies and ear, nose and throat (ENT) disorders.

Information for patients and families

Within our network, we have patient representatives that represent certain patient communities. Besides, we work on several activities for the patient and family community.

Clinical guidelines

For some rare or complex conditions, there are no clinical guidelines available at present. The experts and patient representatives in our network work together to develop clinical and patient guidelines.

Rare diseases & diagnoses

The ERN CRANIO network represents 4 main disease groups: craniosynostosis and craniofacial anomalies, cleft lip and palate, orodental anomalies and Ear, Nose, and Throat (ENT) disorders.

Please click on the buttons to the right to find out more about each disease, or click on the button below to find about more about the disease we represent

Craniofacial anomalies
Cleft lip and palate
Orodental anomalies
Ear, Nose, and Throat (ENT) disorders

Expert centres in Europe

ERN CRANIO is a network of expert multi-disciplinary healthcare professionals from specialised healthcare providers across Europe ('ERN CRANIO member'). ERN CRANIO has 36 member hospitals across 15 EU/EEA countries.

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