Information for patients and families
Within our network, we have patient representatives that represent certain patient communities. Besides, we work on several activities for the patient and family community.
For some rare or complex conditions, there are no clinical guidelines available at present. The experts and patient representatives in our network work together to develop clinical and patient guidelines.
Rare diseases & diagnoses
The ERN CRANIO network represents 4 main disease groups: craniosynostosis and craniofacial anomalies, cleft lip and palate, orodental anomalies and Ear, Nose, and Throat (ENT) disorders.
Please click on the buttons to the right to find out more about each disease, or click on the button below to find about more about the disease we represent