AIRCA

Veronica Leonardi represents people with a craniosynostosis within the ERN CRANIO network.

Aicra ETS was born in 2010 thanks to a brave group of parents who faced a diagnosis of craniosynostosis on their children. Aicra is a non-profit voluntary organization that helps young patients and their families provide them with moral support and psychological support. Moreover, Aicra aims to spread knowledge of this rare disease and stay close to patients and their families from the diagnosis until the post-surgery. To achieve these goals Aicra collaborates with “C. Besta” Neurological Institute, ERN center, based in Milan, Italy. Link to website: www.aicra.it