Joint Action on Integration of ERNs into National Healthcare Systems (JARDIN)
To improve the accessibility of the ERNs for patients across Europe, the EU has funded a pioneering 3-year project involving all member states (MS) plus Norway and Ukraine.
Our reason
People living with rare diseases, complex conditions or undiagnosed diseases have a long journey ahead of them. This journey is known as the ‘odyssey of diagnosis’, because of the difficulty and length of the path that many people with rare diseases and their families face in order to reach an accurate diagnosis. The diagnostic odyssey lasts an average of four years, according to the latest Eurordis Rare Barometer.
Rare diseases are a major challenge for healthcare due to the lack of knowledge and treatment options. That is why research on rare diseases has been a priority for the EU over the past two decades, resulting in collective action to facilitate knowledge sharing and access to specialised care. This led to initiatives such as the European Reference Networks (ERNs) , which have been established since 2017.
To improve the accessibility of the ERNs for patients across Europe, the EU has funded a pioneering 3-year project involving all member states (MS) plus Norway and Ukraine, the Joint Action on Integration of ERNs into National Healthcare Systems (‘JARDIN’). Please find more information on the JARDIN website by clicking here.
