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ERN CRANIO Registry

Background info

BACKGROUND INFORMATION

Aim of the registry

What does the registry entail?

How was the registry developped?

How is patient data used?

Data transfer outside the EU

What are the benefits?

Important document

IMPORTANT DOCUMENTS

The information from the documents and links below was compiled with the greatest care; nevertheless, no rights may be derived. 

Subregistries

ERN CRANIO REGISTRY

The ERN CRANIO registry team and European specialists have developed are  working on developing several disease-specific registries. In case of any questions regarding the ERN CRANIO registry, please email to: ern-cranioregistry@erasmusmc.nl. Below a list of the registries can be found:


 

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ERN CRANIO REGISTRY Educational Materials:

Educational materials

ERN Registry Tutorials:

 

Instruction videos how to upload new metadata file:

 

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ERN CRANIO is funded by the European Union. The content of this website represents the views of the author only and it his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Health and Digital Executive Agency (HaDEA) or any other body of the European Union. The European Commission and the agency do not accept any responsibility for use that may be made of the information it contains. 

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